- Kellie Crameri has opened up on the toll of Complex Regional Pain Syndrome
- The horse owner said she felt like ‘a prisoner in my own body’
- The disease is known as one of the most painful in the world
Horse owner Kellie Crameri has opened up on the devastating health battle that left her feeling like ‘a prisoner in my own body’.
Crameri, who part owns star galloper Fully Lit, has battled Complex Regional Pain Syndrome (CRPS), a rare and painful neurological condition, for four years.
She was told by Australian doctors that there was nothing to be done to help ease the excruciating pain that she likened to being ‘tortured non-stop’.
However, after ending up in a clinic in Arkansas, the United States, she has revealed the amazing news that she is now pain-free and has gone into remission.
Crameri revealed that Fully Lit’s win in the $2million Inglis Millennium earlier this year helped her pay for her treatment, and thanked legendary horse trainer Gai Waterhouse for ‘helping save my life’ as a result of the horse’s win.
‘Thank you Gai Waterhouse and Adrian Bott, and RedFox Racing for helping save my life with Fully Lit’s win in the Inglis Millennium,’ Crameri posted online.
‘Today (Friday) I rang the remission bell in Arkansas, USA for my rare neurological condition which his win helped paid for.
‘They say horse racing can be life-changing, but for me it has been life-saving,’
Kellie Crameri has opened up on the devastating toll of Complex Regional Pain Syndrome
The horse owner has been battling the ‘world’s most painful disease’ for four years
In an emotional statement, Crameri revealed the incredible toll that CRPS has on those with the disease.
‘CRPS is the most painful known disease, accident or injury that can happen to a person, according to the McGill Pain Index,’ she said.
‘No other pain a human can experience compares to the intensity and cruelty CRPS afflicts on a person.
‘Not only is the pain unbearable, but it robs you of your body, mind and relationships.
‘I’ve had thirteen different surgical interventions and injected and swallowed any pharmaceutical product that was meant to give us hope. Nothing lasted or worked.
‘I withdrew into myself. I could no longer think clearly. I struggled immensely with my work and personal life as I was no longer the person I once was and knew I could not last long-term with the person I had become: someone with unimaginable pain who had lost all hope.
‘I had every medical doctor I saw in Australia utter the words to me, ‘I can’t help you,’ and leave me in a distraught mess.
‘Trying to navigate the Australian health system became a thankless full-time job.
‘I had lost all hope. My days had become full of me screaming out loud in pain with an endless stream of tears.
‘I had become a prisoner in my own body and I was being tortured non-stop.’
She was told by Aussie doctors there was nothing to be done to help ease the pain, but she has since recovered at a clinic in the United States
She added that CRPS is commonly known as ‘the suicide disease’ and that she tried taking her own life ‘on three separate occasions’.
The disease affected the dominant side of Crameri’s body, making ordinary day-to-day tasks extremely painful.
She has been pain-free for two weeks, with the Spero Clinic claiming to be the ‘only facility in the world’ to offer the kind of treatment that has helped cure Crameri.
‘By relaxing and rehabilitating the nervous system, as well as correcting any other imbalances within your brain and body, we hope to reset and restore the proper functionality of the systems within your body,’ the clinic said.
